Dallas Sickle Cell Organization started in February 2019. We started the company to stop the stigma, support people affected by sickle cell disease and sickle cell trait by promoting awareness about solutions available to treat, prevent and possibly cure Sickle Cell Disorder (SCD). “My people are destroyed from lack of knowledge.” – Hosea 4:6
Lack of knowledge about sickle cell disorder has caused a lot of destruction, causing preventable pain, deaths and stopped a lot of people from getting a chance at love and marriage. There is a lot of misconceptions and misinformation about sickle cell disorder. We started this company to end the stigma, support affected individuals, spread awareness to the public and inform them about the available resources to manage sickle cell disease and sickle cell trait.
Did you know?
- A single genetic mutation in a child born about 260 generations ago brought sickle cell disease into the world, even though the gene mutation helped protect people from malaria…
- Yes, you can have sickle cell disorder and still live a normal life and not die young.
- Yes, you can have sickle cell disease and still have a healthy baby by seeking genetic counseling and talking to your healthcare provider prior to having babies so that you can be informed about preventative measures and options available to have a sickle cell-free baby.
- Yes, you and your partner can both have sickle cell trait and still get married by getting a consultation through genetic counseling prior to having babies so that you can be informed about preventative measures and options available for you.
- If you already have a baby, speaking with your healthcare provider about newborn screening will help determine if your baby has sickle cell disease or sickle cell trait.
- Genetic testing is a type of medical test that identifies changes in chromosomes, genes, or proteins. The results of a genetic test can confirm or rule out a suspected genetic condition or help determine a person’s chance of developing or passing on a genetic disorder.
- Newborn screening is the practice of testing every newborn for certain harmful or potentially fatal disorders that aren’t otherwise apparent at birth. With a simple blood test, doctors often can tell whether newborns have certain conditions that eventually could cause problems.
- A blood test can check for hemoglobin S — the defective form of hemoglobin that underlies sickle cell anemia. This blood test can be part of routine newborn screening done at the hospital. But older children and adults can be tested, too. In adults, a blood sample is drawn from a vein in the arm.
- Staying hydrated is very important in maintaining sickle cell disease; always have a handy water bottle with you!
The influence of the Dallas Sickle Cell Organization is strongest when we all join forces! We rely on individuals to share their sickle secrets. It could be episodes, current preventative methods, coping methods, support groups, symptoms, warrior stories, stigma stories, how they advocate in their local communities, online, to healthcare providers, the government, workplace, place of worship, throughout the nation it doesn’t matter where, how or when, your story is always an inspiration to someone!
The best way to do this is to join forces with Dallas Sickle Cell Organization, healthcare providers, government and nongovernmental organizations; support groups, institutions, researchers, locally and globally; together we can work towards improving the lives of individuals living with sickle cell disorder.
This is a global issue! Stop the Stigma; Support and Find Solutions!
Our mission is to stop the stigma surrounding sickle cell disease and sickle cell trait, advocate for afflicted individuals, raise public awareness, and promote uninterrupted research to find a permanent cure for sickle cell disorder worldwide.
The vision of Dallas Sickle Cell Organization is to make sickle cell disorder extinct, and to make the world a better place for both warriors currently living with sickle cell disease and sickle cell trait carriers.
To learn more about our organization and advocacy, please contact us at firstname.lastname@example.org.